How are you supposed to act the day before brain surgery? The surgeon's office sends you a packet filled with information on what to pack, what to eat or not eat and forms to fill out. I decided to treat the day before my surgery like any other day. If you haven't already noticed it about me--I like it when things are "normal." I like routine, order and knowing what to expect. Whenever things are not "normal" I try to get them back there as a soon as possible. On the day before my surgery, I did the laundry. It was a good activity that filled most of my day. I also fielded literally hundreds of phone calls, texts, emails, messages and visits from many of you with me and my surgery day on your minds--thank you.
The night before my surgery, I received a priesthood blessing from a dear friend, while my husband, my father and several close friends stood in the circle. The weight of their hands on my head coupled with the presence of the Spirit in my living room was so thick it was almost palpable. My Heavenly Father knew I was going into surgery Wednesday morning. He knew I was scared, He knew what I needed to hear and He was there to comfort me. Tears stream down my face and my heart burns as I type these words--I know my Heavenly Father loves me. I know that everything is going to be okay because I know this. I am a very blessed girl.
I did not sleep much Tuesday night--not because I couldn't, but because I didn't try. I should have tried, though, because when I laid down at 2:21am, it felt like one minute had passed before my alarm went off at 4:25 am.
Matt, Jess, Julie and I were in the car at 4:45am headed for Phoenix. I checked into St. Joseph's Hospital and was sent back to pre-op. I was alone for a minute while I changed and had a chance to think and pray. I kept thinking how unreal most of this felt although, I guess I don't know what I should expect to feel right before a surgery of this magnitude.
A nurse came in and gave me an IV--best one I'd ever had too! I told her so! :) Score! It's the little things that keep me jazzed which is a good thing, I guess you could say.
Everyone I met was SO nice. Warm and caring. I felt very comfortable and knew I was in the right place. Dr. Nakaji came around the corner to say hello--my heart skipped a beat :). Every time I see him, I am so comforted. He said he was ready to go and knew everything was going to go really well.
My anesthesiologist comes in and I love him from the start--a friend of a friend and the best of the best at "Barrow"--I knew I was in good hands. We laughed and talked until I said my goodbye's to Matt, my sister's and my dad. The next thing I knew was I was in recovery trying to explain to Matt and Jess that I felt like I was laying on a yellow lego :). I'm a light weight in every sense of the word and get pretty "high" when I 'm drugged up :).
They moved me to the ICU and then to a recovery room the following day. It's all a bit of a blur. I know I felt pretty much every emotion you can feel though. I know my family and close friends have too. Even though, deep down, I know its all going to be alright, I have felt hopelessness. I have been scared, I have felt angry.
Thursday (the day after surgery) was hard. I think the worst feelings were felt on this day. That night my sweet Bishop and his counselors showed up at my hospital room door telling me that he knew he had to come to see me tonight and offered to give me a blessing of comfort. Heavenly Father sent my Bishop to me that night. The blessing he gave me told me that my mom was with me and that she was of more help to me as an angel than if she was to still be alive. Oh my, I needed to hear that. How comforted I felt and still feel to know that. My mom was with me. Bishop Conway's blessing helped me immensely. I was able to sleep peacefully that night.
Pathology results came in Friday morning:
Grade 3 Astrocytoma. Yes, the tumor is
cancerous. I have cancer.
I have cancer.
Not sure if this has really sunk in yet--maybe it never will.
I have cancer.
Something I can grasp onto is the plan of action...in 1-2 weeks I will begin 5 days straight of radiation for 5 weeks followed by a one month break. Also 5 days of the chemo pill a month. Routine MRI's to make sure the tumor does not grow or change.
Post-op MRI results also show that Dr. Nakaji got all of the tumor he could have possibly gotten (90%) without permanently affecting my motor skills. They are affected though. I have weakness in my left hand and it doesn't do exactly what my brain tells it to do. Typing is hard, opening a pill bottle is hard, reaching for something, walking down the stairs or holding a glass is hard, BUT it is all worth it to be here. I'm frustrated, I'm struggling, but I am battling. I will not give up. The battle has just begun and me and my sweet little family are carefully picking up the pieces and putting ourselves back together.
My sweet babies who bring so much joy to my life. My sweet husband who I couldn't possibly love anymore than I do at this moment. We are trying to figure out this new journey and will do it together. Thank you for your continued thoughts and prayers--they are needed and they mean so much.
Right before Jen's surgery